VERMILION COUNTY, Ill. (WCIA) -- This week is all about Alvin teenager, Blake Kinnett. Saturday, more than 150 people turned up for a fundraiser in his honor.
Kinnett has ALD, a rare degenerative brain disorder with no cure. Now, his family is trying to make screening for the disorder a requirement at birth.
Monday, they got one step closer to making that happen. Representative Thomas Bennett (R) visited the Kinnett family and plans to take Blake's story to the Capitol.